Cystic Fibrosis resources

Resources and additional information about Cystic Fibrosis.

Below is a list of useful resources for more information about Cystic Fibrosis. If you still haven’t found what you are looking for, let your CF team know and we will find an answer for you. This information may bring up some questions around your current treatment and if that is the case, we encourage you to discuss this with your CF team.

For information specific to children with CF, please view the Resources on the Cystic Fibrosis page of the Monash Children’s Hospital website.

Medications

CFTR Modulator Therapies

Fact sheet by Cystic Fibrosis Western Australia.

Cystic Fibrosis Medications

Fact sheet by Cystic Fibrosis Western Australia.

Procedures

Bronchoscopy in Cystic Fibrosis

Information for Cystic Fibrosis patients considering bronchoscopy.

Percutaneous Endoscopic Gastrostomy (PEG)

Fact sheet by Cystic Fibrosis Western Australia.

Peripherally Inserted Central Catheter (PICC)

Fact sheet by Cystic Fibrosis Western Australia.

Ports

Fact sheet by Cystic Fibrosis Western Australia.

Spirometry

Fact sheet by Cystic Fibrosis Western Australia.

CF Related Medical Issues

Bronchiectasis

Fact sheet by Cystic Fibrosis Western Australia.

Cystic Fibrosis Related Diabetes

Fact sheet by Cystic Fibrosis Western Australia.

Dehydration

Fact sheet by Cystic Fibrosis Western Australia.

Distal Intestinal Obstruction Syndrome (DIOS)

Fact sheet by Cystic Fibrosis Western Australia.

Haemoptysis

Fact sheet by Cystic Fibrosis Western Australia.

Osteoporosis

Fact sheet by Cystic Fibrosis Western Australia.

Pneumothorax

Fact sheet by Cystic Fibrosis Western Australia.

Reflux and Cystic Fibrosis

Fact sheet by Cystic Fibrosis Western Australia.

Sinusitis and Cystic Fibrosis

Information about sinus issues in Cystic Fibrosis.

Stress Urinary Incontinence

Fact sheet by Cystic Fibrosis Western Australia.

Work and Travel

Working with Cystic Fibrosis

Information by Cystic Fibrosis Community Care.

Travelling with Cystic Fibrosis

Information by Cystic Fibrosis Community Care.

Mental Health and Wellbeing

Mental Health

Information by Cystic Fibrosis Community Care.

Loneliness and Isolation

Fact sheet by Cystic Fibrosis Western Australia.

Sexual and Reproductive Health

Nutrition

Nutrition information for adults

Factsheet by Cystic Fibrosis Western Australia

Physiotherapy

Physiotherapy in CF

Information by CFPhysio

More resources

CFStrong

Information by Cystic Fibrosis Community Care (CFCC) and Cystic Fibrosis Western Australia (CFWA)

Cystic Fibrosis Foundation (USA)

Information by Cystic Fibrosis Foundation (USA)

Cystic Fibrosis UK

Information by Cystic Fibrosis UK

Book your COVID-19 vaccination -Find out more
+