Cystic Fibrosis resources
Below is a list of useful resources for more information about Cystic Fibrosis. If you still haven’t found what you are looking for, let your CF team know and we will find an answer for you. This information may bring up some questions around your current treatment and if that is the case, we encourage you to discuss this with your CF team.
For information specific to children with CF, please view the Resources on the Cystic Fibrosis page of the Monash Children’s Hospital website.
Medications
CFTR Modulator Therapies
Fact sheet by Cystic Fibrosis Western Australia.
Cystic Fibrosis Medications
Fact sheet by Cystic Fibrosis Western Australia.
Procedures
Bronchoscopy in Cystic Fibrosis
Information for Cystic Fibrosis patients considering bronchoscopy.
Percutaneous Endoscopic Gastrostomy (PEG)
Fact sheet by Cystic Fibrosis Western Australia.
Peripherally Inserted Central Catheter (PICC)
Fact sheet by Cystic Fibrosis Western Australia.
Ports
Fact sheet by Cystic Fibrosis Western Australia.
Spirometry
Fact sheet by Cystic Fibrosis Western Australia.
CF Related Medical Issues
Bronchiectasis
Fact sheet by Cystic Fibrosis Western Australia.
Cystic Fibrosis Related Diabetes
Fact sheet by Cystic Fibrosis Western Australia.
Dehydration
Fact sheet by Cystic Fibrosis Western Australia.
Distal Intestinal Obstruction Syndrome (DIOS)
Fact sheet by Cystic Fibrosis Western Australia.
Haemoptysis
Fact sheet by Cystic Fibrosis Western Australia.
Osteoporosis
Fact sheet by Cystic Fibrosis Western Australia.
Pneumothorax
Fact sheet by Cystic Fibrosis Western Australia.
Reflux and Cystic Fibrosis
Fact sheet by Cystic Fibrosis Western Australia.
Sinusitis and Cystic Fibrosis
Information about sinus issues in Cystic Fibrosis.
Stress Urinary Incontinence
Fact sheet by Cystic Fibrosis Western Australia.
Work and Travel
Working with Cystic Fibrosis
Information by Cystic Fibrosis Community Care.
Travelling with Cystic Fibrosis
Information by Cystic Fibrosis Community Care.
Mental Health and Wellbeing
Depression, Anxiety and Cystic Fibrosis
Information by Cystic Fibrosis Foundation and Cystic Fibrosis Australia
Mental Health
Information by Cystic Fibrosis Community Care.
Loneliness and Isolation
Fact sheet by Cystic Fibrosis Western Australia.
Sexual and Reproductive Health
Cystic Fibrosis Sexual and Reproductive HealthÂ
Information from Spill.
Nutrition
Nutrition information for adults
Factsheet by Cystic Fibrosis Western Australia
Physiotherapy
Physiotherapy in CF
Information by CFPhysio
More resources
CFStrong
Information by Cystic Fibrosis Community Care (CFCC) and Cystic Fibrosis Western Australia (CFWA)
Cystic Fibrosis Foundation (USA)
Information by Cystic Fibrosis Foundation (USA)
Cystic Fibrosis UK
Information by Cystic Fibrosis UK