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Cystic Fibrosis resources

Resources and additional information about Cystic Fibrosis.

Below is a list of useful resources for more information about Cystic Fibrosis. If you still haven’t found what you are looking for, let your CF team know and we will find an answer for you. This information may bring up some questions around your current treatment and if that is the case, we encourage you to discuss this with your CF team.

For information specific to children with CF, please view the Resources on the Cystic Fibrosis page of the Monash Children’s Hospital website.

On this page

Medications

CFTR Modulator Therapies

Fact sheet by Cystic Fibrosis Western Australia.

Cystic Fibrosis Medications

Fact sheet by Cystic Fibrosis Western Australia.

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Procedures

Bronchoscopy in Cystic Fibrosis

Information for Cystic Fibrosis patients considering bronchoscopy.

Percutaneous Endoscopic Gastrostomy (PEG)

Fact sheet by Cystic Fibrosis Western Australia.

Peripherally Inserted Central Catheter (PICC)

Fact sheet by Cystic Fibrosis Western Australia.

Ports

Fact sheet by Cystic Fibrosis Western Australia.

Spirometry

Fact sheet by Cystic Fibrosis Western Australia.

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CF Related Medical Issues

Bronchiectasis

Fact sheet by Cystic Fibrosis Western Australia.

Cystic Fibrosis Related Diabetes

Fact sheet by Cystic Fibrosis Western Australia.

Dehydration

Fact sheet by Cystic Fibrosis Western Australia.

Distal Intestinal Obstruction Syndrome (DIOS)

Fact sheet by Cystic Fibrosis Western Australia.

Cystic Fibrosis Haemoptysis Action Plan

Fact sheet by Monash Health.

Osteoporosis

Fact sheet by Cystic Fibrosis Western Australia.

Pneumothorax

Fact sheet by Cystic Fibrosis Western Australia.

Reflux and Cystic Fibrosis

Fact sheet by Cystic Fibrosis Western Australia.

Sinusitis and Cystic Fibrosis

Information about sinus issues in Cystic Fibrosis.

Stress Urinary Incontinence

Fact sheet by Cystic Fibrosis Western Australia.

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Work and Travel

Working with Cystic Fibrosis

Fact sheet by Cystic Fibrosis Queensland.

Travelling with Cystic Fibrosis

Information by Cystic Fibrosis Australia

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Mental Health and Wellbeing

Depression, Anxiety and Cystic Fibrosis

Information by Cystic Fibrosis Australia

Cystic Fibrosis and Mental health

Information and fact sheets by Cystic Fibrosis Australia

Cystic Fibrosis and Mental health

Information by Cystic Fibrosis Foundation

Mental Health support

Information on supports available from CF Together (Vic)

Loneliness and Isolation

Fact sheet by Cystic Fibrosis Western Australia.

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Sexual and Reproductive Health

Cystic Fibrosis Sexual and Reproductive Health

Information from the Cystic Fibrosis Foundation

Cystic Fibrosis Sexual and Reproductive Health

Information from Cystic Fibrosis Western Australia

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Nutrition

Nutrition information for adults

Factsheet by Cystic Fibrosis Western Australia

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Physiotherapy

Physiotherapy in CF

Information by CFPhysio

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More resources

CF Together

Information and resources by CF Together (Vic).

CFStrong

Information by Cystic Fibrosis Community Care (CFCC) and Cystic Fibrosis Western Australia (CFWA)

Cystic Fibrosis Foundation (USA)

Information by Cystic Fibrosis Foundation (USA)

Cystic Fibrosis UK

Information by Cystic Fibrosis UK

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