We are currently receiving a high volume of enquiries regarding Trikafta. This video featuring A/Prof David Armstrong, Dr Chris Daley and Dr Rob Roseby provides a wealth of information and may answer some of your questions.
Founded in 2016, the Monash Cystic Fibrosis Foundation directly supports the services provided by the Monash Cystic Fibrosis Service (MCFS) at the Monash Children’s Hospital/Monash Health, Clayton.
The Foundation aims to assist in areas such as:
Currently there is no cure for CF, but with advances in ongoing research one day there will be. A “cure” is unlikely to repair lung damage so the Foundation strives to assist the MCFS to keep children and adults battling CF as well as they can possibly be while waiting for that cure.
Monash Health is committed to respectful and meaningful engagement of consumers throughout the health service. As such we have implemented a Cystic Fibrosis Consumer Advisory Panel to enhance and formalise consumer, carer and community participation in improving the services provided by the CF service at Monash Health.
The Monash CF consumer advisory group consists of adults living with CF and parents of children with CF who access healthcare at Monash Health and are passionate about improving the services provided by our organisation. Their contribution is highly valued and does influence the decisions made around the way the service runs. They meet every 2 months to discuss issues, review documents and meet with members of the CF multidisciplinary team to provide a consumer perspective on services, communication and priority areas for service improvement.
If you are interested in becoming involved or getting in contact with the CF Consumer Advisory Group, please contact firstname.lastname@example.org
Monash Health Switchboard: (03) 9594 6666
CF Coordinators (during hours): (03) 9594 2915
Monash Lung and Sleep reception: (03) 9594 2900
Lung Function lab: (03) 9594 2278
Diabetes Adults: (03) 9594 2622
Gastroenterology Adults: (03) 9594 9146
Diagnostic Imaging/Radiology (Adults): (03) 9594 2200
CT: (03) 9594 2198
DEXA Bone Density: (03) 9594 1390
Pharmacy: (03) 9594 2362
Physiotherapy: (03) 9594 2250
Genetic Counselling: (03) 9594 2702
HITH (Hospital in the Home): (03) 9594 2617
Social Work Department (Accommodation for adult patient families): (03) 9594 2290