Every year, an average of 6 – 10 newly diagnosed babies are referred to Monash CF by Genetic Health Services Victoria. Adults with CF transition from our own paediatric service as well as the Royal Children’s Hospital. Our patients come from across Victoria, interstate and overseas. Pregnancy care for women with CF is also provided, along with genetic counselling and pre-natal screening.
Many years of research and experience has shown that the most beneficial approach to care for people with cystic fibrosis is by a multidisciplinary team. The Monash CF Multidisciplinary Team comprises of 8 specialist cystic fibrosis physicians, psychologist, physiotherapists, dietitians, social worker, CF co-ordinator and liaison community support (BoltonClarke -formerly RDNS) nurse/ physiotherapist.
As children with CF become adults, medical care transitions from paediatric CF physicians to adult physicians. Paediatric services at Monash cover the age from birth to age 19; adult services cover the age group from 19 onwards. At Monash CF, we view transition as a period of change that happens over a long time, from before starting secondary school to adulthood. We seek to support young people through this period of change until their mid-20’s and beyond.
We work closely with the Monash Obstetric team as well as Monash IVF to provide the best care for adults with CF choosing to have a family.
In our experience, the most effective way to manage your cystic fibrosis is through a partnership between you, your family and the CF team. We understand that the treatments required as part of managing cystic fibrosis are sometimes intrusive and time-consuming, and we will aim to individualise your treatment to suit you specifically.
Call the CF Care Coordinators on 03 9594 2915 to discuss your intent to transition or transfer your care. You will need a GP referral to see our doctors and a handover of care from your previous treating team.
If you require a repeat hospital prescription to be filled, please call or email the Monash pharmacy with your request. They require 2 business days to prepare your script.
If you require a new script for your medications, please email email@example.com with the following information:
Please note that scripts take time to prepare as patient care takes precedence. Scripts will be completed by the medical team Tuesday and Thursday and either sent out or faxed as per your request. Please try to get your repeat prescriptions when you come to clinic.
Viral swabs (throat and cough) usually take 24 hours processing time through to 7 days for validation and sputum bacterial samples can take anywhere from 5-14 to validate. Cultures may take up to 3 months. Pathology results will be checked weekly, usually on a Wednesday. Please contact the CF Coordinator or email firstname.lastname@example.org for results.
Regular outpatient visits are important for optimal CF care. Appointments can be made by calling the CF Care Coordinator on 9594 2915 or Respiratory Reception on 9594 2900.
Your clinic appointment will generally involve a lung function test, measuring weight and height, sputum sample collection and review as required by the members of the team including doctor, nurse, physiotherapist, dietician and social worker.
It is important that you feel free to contact any member of the team between clinic visits if you need to.
Paediatric clinics Our paediatric clinics run from Monday to Friday but days may vary depending on when your CF physician has clinics. Paediatric CF patients are seen in each respective doctor’s private clinic times, but are bulk-billed.
Adult clinics Dr Pallin has outpatient clinic on a Monday and Dr Daley on a Thursday. We do not allocate a specific consultant to each patient, but you have a choice as to which clinic day suits you and your other commitments best.
Preventing the spread of infection from one person to another is always on our mind and for this reason we have special clinic days set aside for patients who carry certain bugs. As part of this process, there is a colour code identifying the group each patient belongs to. Please be aware of your own “colour” and make sure it is the same as the clinic colour you are booked into. As part of this process, we request a sputum sample or throat swab at each clinic visit.
Best evidence, medical advice and worldwide practice has led to the introduction of a new infection control policy, effective January 2017:
All people with cystic fibrosis entering a Monash Health facility are required to wear a face-mask to limit spreading of bacteria to other people with cystic fibrosis. No surgical mask is required when doing lung function (pulmonary testing), when in your doctors clinical room with door closed or (when admitted as an inpatient), in your ward single bedroom with the door closed.
All Monash Health staff interacting closely with cystic fibrosis patients such as healthcare staff, porters or radiographers are required to wear long-sleeved disposable gowns and gloves for every contact with a cystic fibrosis patient.
We ask our patients to wear a mask to protect themselves (reverse precautions) and masks are available from Admissions, Sleep and Respiratory reception, lung function lab, your CF coordinator and on the wards. If you have a question about infection control, please discuss this with the CF Coordinator or your doctor.
Contact Monash Health CF.
International guidelines recommend all CF patients, in addition to regular quarterly review, should be provided with an in-depth formal annual review. Monash CF conduct paediatric Medical and Allied Health Annual reviews. If you are an adult patient, you can request an Annual review by contacting us.
Yes! Patients and their families are periodically asked whether they would like to participate in research or clinical trials. Talk to your medical consultant if you have a specific question
Bolton-Clarke (previously the RDNS) has a specialist team, including nurses
and physiotherapists, who are experts in cystic fibrosis care and work closely with the Alfred, Monash and Royal Children’s Hospitals.
The team can assist you by:
Who can refer? Anyone. GPs, hospital staff, family members, and teachers. When possible, we will endeavour to visit at suitable times to accommodate school, work and extracurricular commitments. Telephone 1300 33 44 55 and request the Cystic Fibrosis Nurse or Physiotherapist www.boltonclarke.com.au
For support, information, financial assistance and CF related education and advice, contact Cystic Fibrosis Community Care Telephone 03 9686 1811 or http://www.cfcc.org.au/
or talk to your social worker or CF team about your specific needs